Posts tagged squint

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“Oh-noooo” is his favourite word at the moment, complete with comic expression :)

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And today we wore the orange one to match his hoodie :)

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I’ve decided I need to post more photos of MasterB with his eyepatches, I try to match them to his outfits :)

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Progress!

I had to share this moment with you. You see, MasterB’s lack of hand eye co-ordination because of his vision problems has meant that although he feeds himself, it has never been particularly great. He was late in being able to pick up small objects from his plate and eating was usually just grasping handfuls of anything and shoving it in his mouth.

Of course, it all made sense when we found his eyesight was so bad. How could he have picked up small things when everything was pretty much a blur and he struggled to focus on anything close to him. (He is long sighted +8.5 in each eye).

This is why this video makes me happy, a little later than most toddlers but seeing MasterB doing this makes me realise how much he is improving since wearing glasses :)

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Cheeky boy in the bath :) You can really see how much his eye turns in when not wearing glasses in this photo bless him :(

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MasterB had a check up at Sunderland Eye Infirmary this morning and apparently his use of the lazy eye has improved 20-30% over the last 6 weeks we’ve been patching :) He will always need glasses but nowadays I find it strange seeing him without them :)

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I know it’s only been 2 months of wearing glasses and three weeks of eye patching but I’m convinced his wonky eye isn’t as wonky anymore…

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Today’s eye patch matches his outfit :)

MasterB and His Vision – The patching begins :(

So it’s been about 5 weeks since MasterB got his glasses and he suddenly discovered what it’s like to see. The changes in him have been amazing, he’s discovered a love for books, happy land and he has started walking. I can’t believe just how much his development has come on since he started wearing his glasses.

Anyway, last Thursday we went for a consultant appointment at Sunderland Eye Infirmary to see how he is doing. They are impressed with how much he has improved whilst wearing glasses but his lazy left eye is still turning in a bit (though not as much) when wearing glasses. They have decided we need to start patching his strong eye for a couple of hours a day in order to force him to use his weak eye and strengthen the muscles. The earlier we do it, the better chance we have of correcting it.

So this morning was our first day of patching, I hated doing it to him, I know he finds it really hard using his left eye and it upsets him :( I know it’s only for a couple of hours a day and it is going to have hopefully huge benefits in the long run…but doing something which you know is upsetting your baby is still heartbreaking. He doesn’t understand :(

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I’m sure MasterB will get used to it, I’ve no idea how long we will be patching for, weeks, months, years? I’m hoping not too long! We have a follow up appointment in August (and every 6 weeks after that) so we can monitor his (hopeful) improvement and check to see whether the vision is equalling in both eyes.

Another thing the consultant noticed is that the optic nerve in the left (his weaker) eye is a lot smaller than the one in his right. I don’t understand what this means exactly – will it change in size, does it mean his left eye is always going to have poorer vision than his right? I’m pretty sure they can’t do anything to fix optic nerves but as yet we don’t know how much impact it will have on his vision :(

It’s all so confusing, the numbers, the charts that they show me. I sort of understand the basics but trying to understand what the consultant is explaining to me when I have a wriggling MasterB on my knee is hard. I’ve always had good eyesight and so all these terms and numbers are just baffling. I’m sure as our journey progresses I will start to understand it more.

Two Weeks In, An Update on MasterB

Well it’s been two weeks now since I picked MasterB’s glasses up from the opticians and we had that horrific first hour of constant screaming that I thought was going to be the start of a nightmare.

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Two whole weeks and it’s been a lovely two weeks. We haven’t even broken a pair of glasses yet! In fact I have to say MasterB seems to love his glasses, he never ever tries to take them off and when I have to take them off him for bedtime etc, he goes mad at me. If I knew it was going to be this easy I’d have been so less worried :) Its like he has learnt that his world is better when the glasses are on and that’s all there is to it :)

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There have been some really positive changes in MasterB’s behaviour since wearing glasses. Even his carers at nursery have commented on how he has changed. He seems so much happier since getting glasses, it’s not that he was ever unhappy before but looking back he often seemed placid and content to sit on the sidelines. Since having his glasses he is so much more interested in everything that is going on around him and wants to be involved. He will spend ages staring at things and examining them intently.

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Even his eating seems to have improved, he makes so much less mess and seems able to pick up food and eat it so much more easily. Before it was just scooping up handfuls of whatever was in front of him but now he examines his plate and then carefully picks up individual pieces. He still hasn’t had the confidence to take more than a couple of steps yet but I don’t think it will be long until he is chasing his sister around everywhere :)

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One thing I was worried about was whether he’d still be my little baby, it sounds strange but I worried I would lose my MasterB behind his glasses but now when I look at photos of him I see MY MasterB looking back at me, looking interested in the world and looking happy. He’s still my little baby just a happier one :) We have a follow up appointment with a consultant at Sunderland Eye Infirmary in June so it will be interesting to see what they say.

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